Posted by: shessel on: February 9, 2010
I must confess that I’m a little compulsive. When I’m into something, I’m REALLY into something.
So a little snow this morning did not stop me from my daily rounds at the mall – although not sleeping last Thursday night kept me from my daily rounds last Friday.
Compulsive? Yes. Consistent? No.
When you are a mall walker, you get to know faces, names and sometimes lives. We say good morning (a logical thing to say at 7 a.m.) and wish each other a good day as we put on our coats to leave. Between there are comments about each other’s paces and a few “excuse me(s)” if you pass someone.
This morning I finished my last round with Arlene, who had breast cancer three years ago. (My friends did not show up.)
I meet women everywhere who have had this disease and are years out from treatment. Way to go women – for yourselves and for inspiration for those of us still in treatment.
Arlene ended up with a dead battery so I drove her home. And I pieced together what I knew of her husband, who also happens to be in Kiwanis with my husband.
Her husband is a retired pastor who has said this is a Christian nation and the government should act accordingly.
I know this nation was founded on the principle of freedom of religion, although not everyone remembers that. I could put in all sorts of quotes from George Washington, Ben Franklin, Thomas Jefferson supporting that premise, but this difference is not the point.
What we share in common is far more important. We believe in small kindnesses to others and daily walks in the mall (until spring when I’m outa there.) And we value support for other women going through this treatment.
I used to think having children was the great leveler between people. It enables connections between people who might not otherwise have something in common. We connect by sharing stories about our kids: the good, the bad and the ugly things that happened (thankfully, mostly good in our case).
Lately, I’ve noted connections between women who have had breast cancer who I have known or happen to meet in the community. My life will not always revolve around cancer, but when I do have these intersections with women who have gone through it, I have appreciated the encouragement and support.
I look forward to the time when I will be a woman who once had breast cancer five, ten, 15 or 20 years ago. It is my hope that reaching out to women diagnosed after me will help them.
A gal can dream.
Posted by: shessel on: February 8, 2010
It was a big moment Saturday morning, sitting with our kids – Maggie, Michael and Jenny (Michael’s girl friend who is practically a kid of ours) – at brunch.
I took off my hat in the Uptown Diner in Minneapolis, careful not to allow my new long, lush and thick hair to fall into our food. OK, it’s not so long, lush and thick.
“You are not exactly Repunzel yet, Mom,” Maggie said, but “what you have is definitely growing.”
It was a great image. I laughed really hard.
It was amazing. For the first time since this whole breast cancer thing started, I was out of town. I’m back now, so no burglars need visit.
My kids were thrilled with my energy level. As Maggie said, “I feel like I’ve gotten my mom back.”
Michael is finishing his undergraduate degree at the University of Minnesota, where Maggie also graduated. He and Jenny are now waiting for responses on their grad school applications.
Maggie is finishing her master’s degree at the University of Kansas, while working full time as the communications coordinator for the Blue Valley School District in Overland Park, Kansas.
Maggie flew into Minneapolis Friday night because of a baby shower for her old college roommate. Her life has taken a turn since she was flying in to go to bridal showers.
We had a great time eating and shopping and eating. Michael and Jenny even fixed us brunch Sunday in Jenny’s place.
I’ve been such a hermit over the last five to six months that it was great to get out of town and not worry about the Boogey Man coming to get me because my immune system was compromised by chemotherapy.
I am back to being me; no hair and all.
And yes, patience is not my strong suit.
Posted by: shessel on: February 5, 2010
I looked into my cat’s eyes last week on a visit to her in the veterinary hospital and said, “I know how you feel.”
Orangina (yes she is orange and white and was named after the drink) looked just miserable. I knew that look.
Been there.
After a week in the hospital, and mounting veterinary bills in addition to my own medical bills, I said to her veterinarian, “I will be your indentured writer for life.”
“Yes,” Dr. Tom Thompson said. “That’s why we need to make sure that the chemotherapy and radiation are working.”
I laughed. Hard. It was an absolutely perfect response.
Dr. Tom, who had his own bout with cancer a few years ago, said it like it was. We do want that stuff to work, whether to pay off my veterinary and medical bills, or simply because life is too much fun not to be here.
There is a certain amount of irony to my giving Orangina an IV and oral medicine while Dick holds her and a reason I didn’t become a nurse or doctor or anything in medicine.
When my kids were sick, my nursing skills were limited to making Jello and later, handing them a Popsicle. My mom used to make us pudding, which I certainly could have used over the four months of chemo.
I was not at all hard hearted about my children’s illnesses. I just am a weenie when it comes to body functions. Yuck.
I do remember one time when one of my babies – whose name shall be nameless in order to avoid embarrassing Michael – threw up all over me. And, I mean all over me.
At the time, I was wrapped up in a blanket holding the unnamed baby. We were covered and not just with the blanket. I called for help from Dick, who grabbed up everything while I took the baby upstairs to be changed.
The next day, we were looking for the remote control and couldn’t find it anywhere.
Later, I found a perfectly clean remote control in the dryer. With new batteries, it worked again – although clicking it at the other clothes in the laundry basket did not get the clothes put away.
Here’s to Orangina, Dr. Tom and the success of my chemo and radiation so I can pay off bills and continue to enjoy life.
Posted by: shessel on: February 4, 2010
Caution: You’ll need to be able to multi-task to follow this blog entry.
I was playing Scrabble on Facebook, checking my e-mail, and looking for answers to the La Crosse Tribune crossword puzzle on Google. And where was that photo of me at camp, not to mention my favorite hat?
You may think it’s cheating to look up the answer to “No. 74 on the table” but at least I knew it referred to the periodic table, something I never memorized. The answer, by the way, was tungsten. And, for the record, “No. 51 on the table” is antimony and No. 78 on the table is platinum.
But I digress … the real point of this post is that I was doing all this while I was watching a program on public television called “Digital Nation.” I first heard about the program while listening to public radio on a walk. It was all about the dangers multi-tasking and being constantly connected to media – phones, texting, computers, Internet, etc.
I’ll have to Google multi-tasking to figure out what this multi-tasking thing is.
Yes, research is showing that multi-tasking (I’m watching TV as I write this and thinking about what I need to get ready to go for my walk in a few minutes, and still haven’t found my hat) may be making us less efficient.
And it’s risky. Texting and driving increases the risk of accidents many more fold than drinking. (I don’t text and drive, but I do talk on the phone. Drinking alcohol is not my thing.)
Yes, I am a multi-tasker from way back, something that is unusual for someone in my age group. It is supposed to be my kids’ generation – particularly Michael’s – than mine. Kids are considered to be “digital natives,” meaning they grew up with it while the older folks had to adapt to new technology.
I thought multi-tasking made me a Woman of the 21st Century. Turns out it may just be an indication of attention problems to bounce from writing to Google to e-mail.
When I like something, I REALLY like something. I do it a lot. That was true about scrapbooking years ago and the Internet today. And, certainly it is true about my Scrabble addiction. Heck, I love radiation so much that I go every day.
I love the Internet. I love technology so much that a friend told me that she expected one day that I would have it attached to me around my neck. Soon I had a Blackberry, which allows me to check my e-mail everywhere I go – even on the train to Portland a year or so ago.
Now, what I most loved about that story on Digital Nation was a segment on South Korea’s response to over use of the Internet in children – a two-week camp called the Internet Survival School. Students live there and, in effect, get deprogrammed from the Internet by going outside and experiencing a 1950s-style childhood.
I loved camp as a kid, a reason that I was searching for that photo that I mentioned earlier in this post. It was a photo of me at Camp Taum Sauk – and yes I’m wearing a hat but it’s not the one I’m still seeking in the house.
Incidentally, I could not find that missing photo on either of my computers (looking in an album is so 1999), but I remembered I had uploaded it to Facebook. So that’s where I got it.
Have you seen my missing hat? It was not on Facebook or Twitter.
I do have to go back to that Digital Nation program one more time. In South Korea, children are taught responsible computer use. “I think they must learn ethics first, Internet etiquette and manners, and then learn the technical side of it, said instructor Yoo Soo-Gyeong, through an interpreter. (http://www.onthemedia.org/transcripts/2010/01/29/07)
And while I still remember my camp songs from Camp Taum Sauk, I am willing to learn a new song. Korean children learn this one in school about the need for “netiquette” on the Internet:
“I am the guardian angel.
I will be the first to protect.
Though faces are unknown,
it’s a warm neighborhood.
Precious Internet friend, Netiquette.”
Posted by: shessel on: February 3, 2010
If there is a Miss Congeniality for hair loss, I’m sure I would be a contender – at least for a while. No one was a better sport than me about losing her hair to chemotherapy.
I was almost in a hurry to see that happen because I just wanted to get on to the next stage. I’ve never been very good at transitions.
Collletttteeeee (I always have too few or too many letters in her name so I’m embracing the error) took photos as Diane cut off my hair to about a half-inch.
Diane is our mutual dear friend, and hairdresser (or what my mom used to call “beauty operator.”) Diane went through her own hairlessness a year ago after a brain aneurysm, but is back to her full head of hair, wonderful heart that never went away and great mind.
The photos of the transition in my hair include a mullet and an attempt at a Mohawk. I figured if I could laugh about it, I could deal with it.
I went even further in this effort to laugh off my hair, although chemotherapy had much more of an impact.
Once my hair was mostly gone, I had silly photos taken of me by another dear friend, Jen, a wonderful photographer. (www.jentowner.com photography). We had so much fun trying to put together images for a Bald Headed Lady calendar that I hoped to make for 2010, but did not have the strength at the moment it needed to be done.
Besides hair loss was so 2009; hair gain is so 2010.
Yes, I’m ready to have my hair back now! Right now! (And I don’t use exclamation points often!)
You know the stuff, which Dictionary.Com describes as: Any of the cylindrical, keratinized, often pigmented filaments characteristically growing from the epidermis of a mammal.
I do stare in the mirror often to see if any cylindrical, keratinized, often pigmented filaments have grown. The white hair I have stands up on top, but is little more than peach fuzz. (I’m still charging 25 cents to touch it.)
I took a ruler to my head a few weeks ago, and just did it again, but who knows if I was in the same spot. It’s not an easy comparison.
This time I took the photo with Photo Booth software on the Mac since my son Michael is away at school and unavailable to take my photo.
Photo Booth also allowed me to use a special effect called “glow in the dark.” That effect seemed appropriate now that I’m going through radiation.
I was hoping to have more hair when I see my kids this weekend in the Twin Cities, but alas …
Much like a watched pot does not boil, evidently, a watched head does not hair.
Posted by: shessel on: February 2, 2010
I don’t know about you, but I have a pretty healthy imagination – especially for the unknown.
I had no idea before I began radiation what it would be like or even what the room in which the treatment is given would be like.
I imagined the bomb shelters that cropped up when we believed the Russians were coming to get us. Another possibility in my mind was off the iron lung machine of the 1940s that treated patients with polio in the 1940s and 1950s. And I also wondered whether I would hear a Geiger counter ticking away in response to the radiation.
None of these things happened. A machine does go around me and it makes a humming sound when it is radiating me, but it’s really not scary. And the sound is short lived. I am given radiation from four directions to make sure every angle is covered.
Radiation ensures that whatever cancer may have survived surgery and chemotherapy (but hopefully not) gets what it deserves.
The folks who work in cancer care, whether it is chemotherapy or radiation, are absolutely wonderful people. They are upbeat and caring. And they are willing to laugh at my comments.
I have a picture of me on the radiation table because I wanted to show my family. Also, while I hope no one ever needs this service, I want it to give you confidence about the treatment ahead.
I thought today of the Debby Boone song, “You Light Up My life,” which I tweaked it a bit for this latest treatment. I hope Debby – who had breast cancer some years back – doesn’t mind.
You radiate up my life
You give me hope
To carry on
You radiate up my days
and fill my nights with song
And here is a picture.
Posted by: shessel on: February 1, 2010
Another one you didn’t see coming; I’m sure.
Today, when I finished my 3.3 mile walk at the mall, the voice of Tiger Woods came on my iPod, which tracks my distance and speed:
This is Tiger Woods: Congratulations. You’ve just completed your fastest mile to date.
It was enough to make me take up golf.
Not.
I played golf for a season or two with friends from the School District of La Crosse plus my friend, Gayda. It was great fun at the time as we called ourselves the Not Up to Par Players (NUPP).
(I know that it is really down to par but we couldn’t create a cool acronym for that one.)
I grew tired of golf. What I don’t like about it is it is hot and there are bugs.
But that personal message from Tiger Woods amused the heck out of me. I know longer claim I have no connection with him.
I am not one of his 17 mistresses (Why are women automatically called mistresses in these situations?), or am I? You can check out a list of photos and descriptions of the women connected with him – supposedly – at this website
The website does give a caveat: “So that’s it for now – 17 women. Remember they are still not all confirmed though.”
I am not that interested in Tiger, actually, just amused that he popped up this morning to congratulate me. Obviously, these programmed voices were created before Tigergate.
And now, I’m wondering if I walk faster tomorrow, if I’ll hear from John Edwards.
Posted by: shessel on: January 31, 2010
There is more to life than Scrabble, although it’s taken me a little time to realize that.
Yes, this Saturday night that added life included the Kansas–Kansas State basketball game and the Miss America Pageant.
I’ll bet you didn’t see that coming (unless, of course, you read the headline for this blog entry).
Kansas might be easier to understand as my daughter and son in law lives in Kansas. Mike – the son in law – is a huge Jayhawks fan having graduated from the University of Kansas. Maggie, a University of Minnesota graduate, is finishing her master’s degree at KU while working full time.
And, I am a KU alumnus of sorts. I took a six-week summer Spanish program at KU while in high school.
And two years ago I was in Kansas City for a wedding shower for Maggie the weekend of the NCAA Final Four the year that Kansas won the national championship. It was incredible fun to be with all their friends – and many of their friends’ parents.
“All the cool kids have their parents here,” one of the friends said.
Cool kids = parents. Yes, life has changed.
I also have a long history with the Miss America Pageant. If you are reading this, I’m sure you assume that is because I was a contender for Miss America. Not exactly.
But as a little girl growing up in suburban St. Louis, I naturally wanted Miss Missouri to win and now, of course, I want Miss Wisconsin to win. With Miss Wisconsin from the La Crosse area, I have a greater interest this year, a reason I went back and forth between B-ball and P-girls.
Also, I must confess that my first date with my husband back in 1974 was the Miss Oktoberfest Pageant in La Crosse, an event that could lead to the Miss Wisconsin and Miss America Pageants. Dick had to cover the pageant for the La Crosse Tribune, where I also worked at the time. I went along with him, even though my tongue as they say was firmly planted in the side of my cheek.
I remember that night for two reasons. First, Dick had to caution me about not making smart aleck comments as there would be many family members of the contestants all around me.
Even more important I learned something about newspaper reporting. After the pageant was over, Dick had to interview the new queen.
“How will you know which one she is?” I asked.
“She’s the one wearing the crown,” he responded.
Duh. Dick had been a reporter longer than me. He knew these things.
Oh one other thing about the Miss America Pageant. Back still in my Tribune days, there was a Miss Wisconsin from La Crosse itself. It was incredibly exciting until it was discovered that she owed money all over town that her creditors were suing her to get back.
When a La Crosse Tribune reporter called to get a comment after one suit was filed, she turned out to have “HBO mouth,” as I call it and HBO had yet to be invented. If you don’t know what HBO mouth is, I can’t write it here. This may not be a family column, but my mother would not put an S in front of HIT in Scrabble even to get 50 bonus points. It’s the way I was raised. She certainly would not have put the word down that comprises most of the dialog in HBO. I would.
Around that time, we had a bunch of giggles in the newsroom about that particular Miss Wisconsin. It also was the time when beeley-poppers were hot and I happened to be wearing them like a tiara. A Tribune photographer took the photo of me that heads this blog and posted it on a bulletin board in the newsroom with this cutline: “Miss Newsroom confronts her creditors.”
Despite the tarnish on the Miss Wisconsin crown that year, my daughter who was probably 2 or 3 at the time, still loved watching the Miss America Pageant in our motel room in Minneapolis. Her eyes and imagination were wide open.
So this Saturday night, I bounced back and forth between the KU game, sending a Rock Chalk Jayhawk text message to my son in law before it started. And I was pleased to be able to say that months earlier I reassured Mike about my medical care because I was able to say to my surgeon, “Rock Chalk Jayhawk.”
“How did you know?” Dr. Christian asked. Naturally I had looked her up. She is a KU graduate, both undergraduate and medical school, not to mention residency at KU-Witchita.
It was an incredibly tight game Saturday night with the KU archrivals, Kansas State, which was ranked 13 in the nation. Mostly, KSU loses that match up, but two years ago, it beat KU. But KU that year went on to win the national championship.
It was home game for KSU, exactly two years after it had beaten KU, a very, very rare occurrence since KU = basketball. KSU fans held signs Saturday night that said things like, “I hate KU.” Seems a little excessive to me.
KU prevailed in overtime and likely moves into being the number 1 ranked team in the NCAA, a mark it held for weeks earlier in the season.
The La Crosse area contestant,Kristina Smaby, did not fare as well in the pageant Saturday night, but you do have to admire this gutsy young woman for her determination. Smaby reached the national pageant after her fourth try at local pageants. According to the La Crosse Tribune, she has won the following titles in the Miss America Program: Miss Holmen 2005, Miss La Crosse Oktoberfest 2006; Miss Prairie Shores 2008; Miss Madison-Capital City 2009; and Miss Wisconsin 2009.
Miss Newsroom never had that determination. And I’m not sure that I could be an effective candidate with a talent limited to “smart aleck.”
And, we don’t want to talk about high heels and the swimsuit competition. Trust me. We don’t.
Posted by: shessel on: January 29, 2010

I am not those guys, although I do wear a "husband beater shirt." This photo and article are from the January 28, 2010, La Crosse Tribune, in advance of the Shades of Blue Tattoo Show this weekend.
Jews with tattoos & Me
I laugh therefore I am.
I laugh because if I didn’t, the world would be too serious. And cancer – seriously – would be too serious.
Therefore, this blog is about tattoos, body art that is filed with irony for me. But Just about everything these days is ironical.
Shortly after Christmas this year, I was watching one of those chef shows that I love so much, despite not cooking much. I noted to Michael’s girlfriend that I just didn’t “get tattoos.” She really likes them and would love to get a “sleeve tattoo” when she can afford it.
I told her that I didn’t like them, and I wondered how a tattoo looks on wrinkly skin of a 70 or 80 year old. I respect her decision, but secretly hope she never gets that much money. Please don’t tell her I said that.
So who would be the first to get a tattoo after that conversation? Me. Four of ‘em.
OK, these four tiny dots aren’t exactly body beautiful beauty shots. They aren’t the stuff you strut in body art shows.
They highlight the target area for radiation. But they are permanent and as an article in the La Crosse Tribune says, “Think before you ink.”
A couple years ago as I was working on two books about living with childhood cancer, I interviewed a mother who worried about the radiation tattoos on her daughter because of her faith.
Many believe that Jewish law bans tattoos and that having one prevents you from being buried in a Jewish cemetery. And then there is the harrowing image of the numbers tattooed on to the arms of Jews in Auschwitz.
Still the number of Jews with tattoos is growing, especially in the age group of 18-25.
The supposed ban goes back to Leviticus 19:28: “You shall not make gashes in your flesh for the dead nor incise any marks on yourself: I am the Lord.”
According to some articles that I’ve read about Jews with tattoos (and yes that does rhyme well), that biblical reference related to Jews once cutting into their bodies during grief following the death of a loved one. http://www.nytimes.com/2008/07/17/fashion/17SKIN.html
The New York Times article said many Jews still consider tattoos unJewish while some young people have added Jewish images to show the world their faith. There is even a Jews with Tattoos Calendar that was created by the Jewish Voice for Peace Seattle.
Again, some rabbis say tattoos are forbidden and others do not condemn them or those getting body art. Some suggest the young person may not want that tattoo late in life.
My tattoos are just little dots that I can’t see well in the mirror. However, the therapy team found them easily on Wednesday, lining me up perfectly. But then the machine stopped and they could not get it going again, an indication – I hope – of the failsafe systems built into the program. (See previous day’s blog.)
Hopefully, radiation oncology is back in business today with the linear accelerator working again perfectly. Still another part was needed Thursday to make it operational.
I have a plan for if I don’t get radiation today. I’ll take my tattoos and put them to good work at the Shades of Blue Tattoo Show that starts today in La Crosse.
Did I mention irony?
Posted by: shessel on: January 28, 2010

Despite the simularities, this is not me and this is not the radiation therapy table at Franciscan Skemp. The table goes up in the air and Gene Wilder announces, "I am Frankenstein!" Throughout the movie until that moment, he had pronounced the family name differently to not confuse himself with his famous grandfather. "I am not a Frankenstein. I'm a Fronkensteen. Don't give me that. I don't believe in fate."
I had a bigger dose of irony Wednesday than I had radiation.
A friend of mine sent me an article over the weekend that was in the New York Times. It warned about the dangers of radiation if something goes very wrong.
“So, anyway, here is a truly gruesome article about what can go wrong during radiation, and what can I say but that I’m sorry I feel the need to send it to you AT ALL…but maybe mentioning it to your techs will be a bonding experience…???” my friend wrote.
She went on to say that she considers herself to be a PIA – Pain in the Ass Patient – “patient from hell with pride.”
“Unless I’m in an extremely exhausted, compromised, desperate, rather-be-dead state of being (which has happened a few times), I interrogate the hell outta any person who will touch me with their own hands or with machines…and I require the full layperson’s 101 of what, why, how and when…,” she wrote.
I firmly believe she sent the article because she was concerned about me. It was not to frighten me but to make sure I asked the right questions.
The article, as my friend suggested, was pretty gruesome. It focused on two patients in New York who had been given fatal overdoses of radiation and they were not nice ways to die. The reporters also reviewed records of radiation errors in New York.
I spent three days trying to figure out what I would do with this information. Should I tell them to “be careful?” Or should I say, “Please aim well.”
Knowing that radiation is something that I really need, I tried to stuff down my worries.
I brought the article with me to my first radiation session today. The radiation therapist who brought me to the changing room asked if she could show it to the physicist.
He talked to me about the article, procedures they used and the safeguards built into the linear accelerator, the machine that delivers the radiation. Each patient’s radiation plan is reviewed by three specialists to ensure it is correct.
The linear accelerator will not work if there is anything wrong at all. All procedures and the linear accelerator itself is the same as that used at Mayo Clinic in Rochester, which has very high quality control standards.
So there I was on the table Wednesday with my arms up over my head, fitting into the form created for me at last week’s simulation. Bands are on my ankles to make sure I don’t move.
Two therapists adjust my body – I’m not supposed to help – so it is in the exact position for the plan created for me. X-rays are taken for further confirmation.
And it’s time to begin.
There is a buzzing sound for a minute or two and then it stops.
I either broke the machine or the physicist was providing proof to me that the linear accelerator will not operate if there is anything wrong. The machine had indeed locked itself out.
The therapist told me that I could sit up, but noted that I was up pretty high so I should not try to get down. Even the motor that lowers and raises the table was stopped.
It was not as high as the laboratory table in the movie Young Frankenstein, but I certainly didn’t want to be a jumper. After all, life is worth living.
It’s pretty obvious that I’m not still up in the air as I write this. The table was lowered and I am home.
In an editorial in Wednesday’s New York Times said, “Manufacturers need to develop software that will shut down the linear accelerators before they can deliver extreme amounts of radiation.”
I can testify that safeguard is built into this system.
So Thursday – if the machine is working again – I’ll have the other portions of my first treatment that I did not get today.
Radiation? Not so much Wednesday.
But I’ve had one-fourth of one of my 33 treatments. That would be 1/132nds of radiation done.
Now that’s progress.